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Junco's Blog
Wednesday, 12 November 2008
The Poor Have Medicaid, The Chronically Ill/Disabled have Disability, and Other Popular Myths
Topic: Public Policy

About forty-seven million people in the US lack health insurance coverage. I wonder how many of these people are chronically ill/disabled who can't get on Disability even though their medical conditions are on the Social Security Administration's list of qualifying disabling conditions? How many would be or should be able to qualify for Medicaid through their state, but can't because their state gutted their Medicaid program, or because they are childless or have grown children and live in a state where Medicaid only covers families with minor children? 

For far too many of the chronically ill/disabled the idea of Disability serving as a safety net is a joke and a hoax. I wonder how many people in this country who have qualifying disabling conditions are being denied Disability and are instead shunted onto Welfare, their health conditions largely ignored? 

In how many states have the rules and “games” regarding Disability eligibility become downright cruel for those suffering from life altering medical conditions? How many people are living with untreated and unmanaged conditions which are being allowed to worsen, which can include living with chronic pain and discomfort, that degrades and destroys their quality of life and will ultimately shorten their lifespans, all unnecessarily? 

I live in a state where the rules are rather strict and stingy regarding who can qualify for Disability. A majority of the illnesses listed on the Federal SSA list of Disabling Conditions don’t apply in this state, and a number of them are completely ignored when it comes to the state Medicaid program, which is one of those only-for-families-with-minor-children set-ups. The ‘unofficial’ rule, the 'game' you're expected to play for Disability eligibility is: Working aged adults who become chronically ill/disabled, who aren’t either HIV+, or terminally ill and expected to live no more than 12 months, are basically expected to have themselves “diagnosed” with some type of mental illness in order to qualify for Disability. That’s the way it goes. Either fake a mental illness or you likely won’t be able to get on Disability. It's the way the game is played. So it becomes decision making time, play the game and fake a psychological/psychiatric problem, or go without care. Yeah, it’s a tough choice, but it’s a game some of us won’t play, so you learn to go without and have extremely spotty access to the most basic of medical care even though it’s to the detriment to your health.

Is it even Federally Constitutional to have a State’s Disability system set up this way, especially considering there are legal implications involved to a mental health diagnosis that don’t exist when you’re talking about all other illnesses?

Do an excellent job at faking a mental illness and worst case scenario- you’ll wind up in a locked psychiatric ward, heavily drugged…even worse- you could be judged mentally incompetent. On the other hand, do a great job at faking a bad back and the worst that will happen to you is you’ll have an MRI, be given cortisone or a pain killer, and you’ll undergo physical therapy. Big difference there, isn’t it? 

What exactly are the medical and legal implications to being diagnosed as too mentally ill to work- too mentally ill to be a self-supporting, fully functioning member of society? Obviously these issues must be awkward enough for the genuinely mentally ill to deal with, but what exactly are people who are faking a mental illness in order to get on Disability because they cannot get on it via their true medical conditions really getting themselves into?

When people fake a mental illness for Disability eligibility, do they wind up having a Psychiatrist as their assigned Medicare/Medicaid primary care physician? Are they less likely to end up seeing the specialists they genuinely need, such as a rheumatologist, an orthopedist, or a cardiologist? Are they pushed or forced to take psychotropic drugs that they don’t really need and shouldn’t be taking in the first place, even if they experience negative or uncomfortable side-effects? Are they more likely to be unnecessarily placed on tranquillizers? Are they more likely to have their real medical conditions ignored- improperly or inadequately treated, or not taken seriously- because of their mental illness status? Do they lose some of their autonomy and decision making abilities regarding their medical care in ways that don’t happen to those diagnosed with other illnesses? Can they, under certain circumstances, lose their right to refuse certain types of treatments or therapies because of their mental illness label? 

Does anyone in State government who pushes chronically ill/disabled people to have themselves diagnosed with faux mental illnesses in order to qualify for Disability ever pay attention to what the consequences are for these people? How do these consequences play out when the disabled person ‘faking’ a mental illness is young and/or very much undereducated- someone not fully understanding of the gist of these implications? 

Why is it often easier and faster to be granted Disability for mental illness than other medical conditions? I'm not talking about serious mental illnesses like schizophrenia, or severe cases of post traumatic stress disorder diagnosed in soldiers returning home from war... It's much easier for people in some states to get on Disability with a general depression or anxiety diagnosis then for those with painful and disabling rheumatological, respiratory, and cardiac conditions. Yes, I understand that some people have such severe forms of depression and anxiety that they cannot function properly at all in their lives, cannot function well enough to hold down a job; but is it fair to have a system where any mental health issue label, even flimsy ones designed 'just' to get someone on public assistance, can automatically result in an “Approved” stamp on a Disability application, while people suffering from disabling physical ailments are turned down? And some are forced to spend years fighting for eligibility, and may never be approved anyway? 

We have a system in some states that actively encourages game playing, illness diagnosis faking/swapping for eligibility, and adds a definite sleaze factor when it comes to getting the chronically ill/disabled with physical ailments on Disability. This is something that needs to change.  


Posted by juncohyemalis at 8:01 PM EST
Thursday, 30 October 2008
Flawed Public Policy- Pitting the Chronically ill/Disabled Against the Disadvantaged/Undereducated Poor
Topic: Public Policy

One of the obvious problems with the use, or misuse, of the way Disability eligibility is determined can be seen in Carolyn Feibel’s “Disability City” articles, and this is a flaw that is very much present here in New Jersey- the SSA Disability Program has been transformed from a safety net for the chronically ill/disabled from all backgrounds into a version of Welfare II for the disadvantaged poor.  

While there are genuinely ill and disabled people from poor urban and rural areas on Disability, clearly others wind up in the program because it’s a stop-gap measure, a way to provide undereducated and unemployed people with an income, food, housing and basic medical care, without state, county and municipal governments actually bothering to put in the time and effort to help fix the problems found in poor urban and rural areas. 

Why bother doing anything to improve economically depressed areas and their people when you can dump them on Disability instead?

The problem is these recipients don’t all belong on SSI or SSDI, and would actually be better served with a combination of local healthcare programs, job training and job placement programs, financial aid programs for continuing education- be it in a trade or vocational school or a community college- and community based healthy lifestyle and mental health counseling programs.

Only a finite number of people are going to be granted Disability in a given year, and when these ranks are being filled by people who really don’t belong there, this is done at the expense of the genuinely chronically ill/disabled who very desperately need the healthcare and economic safety nets the Disability programs provide.  

Posted by juncohyemalis at 12:54 AM EDT
Updated: Thursday, 30 October 2008 12:57 AM EDT
Sunday, 21 September 2008
Unearthing 'Disability City'
Topic: Public Policy

In June 2004, journalist Carolyn Feibel, then a reporter with the Herald News of Northern New Jersey wrote a two-part series Disability City- “Special Report: Disability City” and “Disability benefits more attractive than welfare for just getting by”, which exposed the 'culture of disability' in Paterson New Jersey, the city with the highest disability rate in the nation with 35% of working aged adults in Paterson on Disability- either SSI or SSDI.

Both articles can be accessed online through the Internet Archive Wayback Machine website: http://www.archive.org/web/web.php  by pasting the original article URLs onto the Wayback Machine homepage.  There is some sort of quirk whereby clicking on a typed link of these 'Disability City' Wayback pages (from a source such as this article) won't always take you to the proper Wayback archive webpage. Instead you'll reach an error page. I'm not sure why this glitch occurs, but that's why I suggest you CC&P the old NorthJersey URLs into your browser, then go to the Wayback site. You can then successfully save the archived articles's URLs directly to your bookmarks file for future reference without further accessing difficulties.

Special Report: Disability City. The Herald News. http://www.northjersey.com/page.php?qstr=eXJpcnk3ZjczN2Y3dnFlZUVFeXk1NyZmZ2JlbDdmN3ZxZWVFRXl5NjU0MTY5OCZ5cmlyeTdmNzE3Zjd2cWVlRUV5eTI=

Disability benefits more attractive than welfare for just getting by. The Herald News. http://www.northjersey.com/page.php?qstr=eXJpcnk3ZjcxN2Y3dnFlZUVFeXkyJmZnYmVsN2Y3dnFlZUVFeXk2NTQxNzAx

These now largely forgotten but insightful articles offer some food for thought regarding the public policy implementation of social service and medical care safety nets for two very distinct and sometimes overlapping groups- the chronically ill/disabled and the disadvantaged poor; and how both groups are often being failed miserably by the system. I'll be starting off this blog by examining some of these issues in greater detail.



Posted by juncohyemalis at 9:52 PM EDT
Updated: Monday, 22 September 2008 9:47 PM EDT

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